Sickle Cell Patients Plan Day at the Capitol
Patients and Families Seek Support for Treatment and Research
3/18/2014, 9:41 a.m.
Atlanta, GA - The Sickle Cell Foundation of Georgia, Inc. announced today that it will host Sickle Cell Day from 10 a.m. - 4 p.m. on Wednesday, March 19, at the State Capitol. A brief program will be scheduled for 11:30 am.
Sickle cell patients, families, providers, and supporters from around the state will gather to inform representatives about challenges shared by the sickle cell community and to express appreciation for the State's continued support. Participants will gather at the Capitol South Wing, 20 Washington Street, SW, Atlanta 30334.
Sickle cell disease and sickle cell trait are genetic blood disorders that affect nearly all populations. Sickle cell disease is painful and can be fatal. Sickle cell trait carriers experience few, if any symptoms and may not be aware of or take necessary precautions.
Since 1971, the Sickle Cell Foundation of Georgia has advocated for improved treatment, research, and a better quality of life for patients and their families. Founded by Dr. Delutha King, a retired Atlanta physician who remains active on the board, and the late Dr. Nelson McGhee, Jr., the Foundation conducts sickle cell education, testing, and counseling throughout the state. The Foundation encourages athletes and everyone of child-bearing age to be tested for sickle cell. Testing is available at the Foundation by appointment and throughout the State aboard the Mobile Laboratory.
The Foundation also operates Camp New Hope, a program for children with sickle cell ages 6-15. The 2014 camp will be held June 29-July 4; registration is open at www.sicklecellga.org. The camp is supported in part by the annual Sickle Cell Road Race. This year's race will be held on Saturday, April 12th at Welcome All Park. Race registration is open at active.com.
For more information contact the Sickle Cell Foundation at (404) 755-1641 or visit www.sicklecellga.org.